NewsLocal NewsIn Your Community

Actions

First Angelman Syndrome Walk to take place this weekend in Atascadero

Posted
and last updated

People in northern San Luis Obispo County are walking to help find a cure for a rare genetic disorder.

Saturday, May 11 is the inaugural Angelman Syndrome Walk in Atascadero.

Organizers are joining 50 other communities nationwide to raise money for the Angelman Syndrome Foundation.

For a Paso Robles family and their four-year-old daughter, this walk is extra meaningful.

Logan Lowe was just 8 months old when she was diagnosed with the disorder.

The preschooler takes daily medication for seizures and attends physical therapy once a week.

“The not being able to walk makes it hard so we’re kind of carrying her around everywhere. If we’re out and about, we always have to have some sort of a stroller or chair for her to push her in. The non-verbal is probably one of the hardest things. Most of them are non-verbal,” says Logan’s mother, Kayla Lowe.

Logan Lowe and her mom, Kayla. KSBY photo

 

The neurological disorder affects about 1 in 15,000 people and Logan is one of three known cases on the Central Coast.

The walk will start at 11 a.m. on Saturday. Registration begins at 9 a.m. at the Atascadero Lake Park Bandstand.

Click here for more information.